DEBRA is a charity for children born with Epidermolysis Bullosa - a rare, painful, chronic incurable disease characterised by extreme fragility of the skin - the lightest touch causes blisters and open wounds.
Children can suffer from long and painful daily treatments; the loss of both hands and feet causing serious disability and total dependency on carers; constant health issues such as malnutrition, anaemia, narrowing of the oesophagus, infections, malignant skin, dental complications and more – a truly terrible affliction! For further information on the work of DEBRA please look at www.pielemariposa.es
An event has been planned by three local Masonic lodges for the 20th June in Hostal Rural in Turre, Almeria to celebrate both the monies donated by the local Lodges and other organisations in the surrounding areas and to raise awareness of DEBRA itself.
There are 250 families in Spain with a Child, suffering from this dreadful and debilitating disease
Your appearance on the 20th June from approximately 12:30pm to about 4:00pm – just a few hours but they will make all the difference to DEBRA
Ana Maria of DEBRA together with one of the people affected by Epidermolysis Bullosa are going to travel from the Marbella area all the way to Hostal Rural in Turre to say ‘thank you’ for the donations of money given by the three local Masonic Lodges and other organisations 30,250€ in total – a remarkable amount to have given freely over the last three years
Thanks will be given about the Charity Festival and the work of DEBRA
You are ALL invited to join us on the day to make this event a day to remember
All the local Masonic Lodges have donated further sums to allow the entry cost to the event to kept at an absolute minimum so that as many non-Masons as possible might attend and spread the word about DEBRA and the incredible work that it is doing and possibly add to the funds generated which go towards helping the children affected by this awful disease by providing more specialist nurses and other clinical staff
Accommodation can be arranged at Hostal Rural if required
If you are interested in attending or in more information
Please contact the event organiser – Mel Hughes – melhughes1949@gmail.com
